Wednesday, August 18, 2010

Where Are those Curls? and so much more.......

William looking deliciously handsome with a full head of curls....
Where are the curls now? Yes, mommy went a little overboard with the cutting... but he looks so mature with the big boy haircut. Now at 37 lbs he certainly is a big and healthy boy. William has had a few colds this summer but has been pretty healthy! Seizure control has been the largest health challenge; as I just put a call into Neurology yesterday and once again we are increasing his medications :-(
Ella and daddy triumphant after a successful potty run....
My big three year olds and I.... the twins turned 3 on August 3rd after having a wonderful party with many friends and family. We are closing the summer with another trip to the Adirondack mountains. Friends of my parents own a townhouse in Lake Placid and give us a fantastic rate.
The Beyers family will be kicking off the Fall season with Ella starting preschool two days a week and William entering the 3-5 system but receiving all home based services. Once a week William and Ella will be going to a play group together and William will hopefully be taking some water therapy classes. I am also pretty sure William will get music therapy in the home as well!! We live in such a fantastic area rich with resources for children with special needs. Which brings me to our fundraiser for a group we are part of called Flower City Down Syndrome Network (FCDSN). Every Fall the group holds an event called the Buddy Walk to raise awareness for people with Down Syndrome and to raise funds that the group relies on. Our family joined this group a few months ago and this will be our first Buddy Walk. To sponsor us and help by making a donation go to this link ;
Even a small donation will not only benefit our family but many other families in the Rochester area.
Mommy is trying to kick off the Fall with some new experiences as well. I applied for a contest which is giving away scholarships for an online writing class especially for mothers. I am keeping my fingers crossed :-) I enjoy writing but would love some guidance. One year ago this September my friend Jamie and I started a support group for mom's that have children with multiple special needs and/or are medically fragile. The group just changed its name to MEMO- Meeting Extraordinary Moms Out (thanks to Carleen!!!!). As the name suggests we meet out once a month for dessert, information sharing, and support. Ten women came out last month; two of which were new! Our group will also be featured in a local free publication called Rochester area and Genesee Valley Parent for their annual September special needs issue.
So exciting!!!!

Adirondack pictures will be coming soon :-) Happy August!

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