My baby boy is getting so big! Sometimes it is easy to miss how much progress he has made because he is always with his twin sister who is typically developing. Even as his mom I sometimes overlook all that he has done. Just last week someone dear to me said, " Erin, you are underestimating him." At first I was a little taken back and angry but soon realized that she was right. Although my love for him is strong I saw that my expectations for him were very low. I suppose it was a sort of self-defense mechanism that I unconsciously used. Although his progress is slow he IS moving forward when seizures are kept under decent control; which is always a struggle. Just last week William was almost rolling for his Physical therapist. She placed her hands on the muscles he needed to use and gave a little pressure to activate them. Then slowly very slowly he rolled without being directly manipulated!!!!! This is HUGE for William. It really opened my eyes to seeing what my son can do. Not only has he begun to use his muscles to reach and roll but also has been eating like a champ and using his vision more. This morning I noticed that he was holding his hand in front of his face longer than usual. At first it seemed like he was itching his nose, which he does often, but then he just held it there and watched it!! He was looking at his own hand. For a child with a cortical vision impairment this is also HUGE!! He is also starting to feel his diaper when I change him. Learning to use his hands to explore his environment has been a tremendous accomplishment.
I could write a few more paragraphs on how proud I am of my son! He is such an amazing boy that is getting big so fast. I hope others can see the seemingly small things he can do and realize just how huge those accomplishments are. Way to go William!!!